Life changes

So I’m frustrated and I just don’t know where to start. I’m overwhelmed and with no answers, it is scary.

It’s scary not knowing what my daughter can or can’t eat. Or if she will go into anaphylactic shock for eating something she shouldn’t.

I think The biggest thing is the unknown. Everything is just so new and only 2 doctors are really studying what she has, so it is scary.

One minute she was enjoying hotdogs & hamburgers the next we found out they were making her sick. So that’s another I struggle I deal with. I was feeding my child something that was hurting her, without even knowing.

How can something so tiny cause that much trouble? Some say the government trials, others say it’s been around but no one knew about it. All I know is it is now a part of my family’s life. We have to make life changes which can be very trying!

Sometimes we have to cook two different meals, while others we try new things. I have to not only watch but teach her what to watch for. We have to make sure she doesn’t feel left out and provide education to her school, friends, and other family.

This is a life altering & can be life threatening diagnosis. There is currently no cure and it can get worse over time. So all I can do is learn as much as possible, ask lots of questions, and most of all, provide support for her.

Life changes, we just have to gain more knowledge and move on.

Living with a Child with Red meat allergy

Went to the doctor yesterday and he said she goes back in 3 months. Praying the test is negative as he said it has to be negative 2x before he would let her chance eating any red meat. So if that one is negative she will go back in 3 more months for another test. As you can have false positives.

So she still can’t have any “hairy mammal” meat. He said that sometimes people can go into remission but it is still too new to determine too many details on whether they can safely eat meat. But there are now studies on alpha-gal. So hopefully there will be better answers soon.

She has to be careful about some foods you wouldn’t think have meat byproducts including some medications. But he said Claritin as well as the equate version of liquid Benadryl is okay for her to use.

So a lot of new things. Her tests also confirms her allergy to milk, which we already knew about.

It is hard to change your whole lifestyle, so quick, from one thing that happened. It can be life threatening but so far it’s not. Hopefully we can keep it that way.

So for now we just keep on praying and have faith for healing!

Alpha-Gal Syndrome

So what exactly is alpha gal allergy. It is an allergy that has been recently discovered that prevents people from eating red meat because an allergic reaction. They are still researching but it has been found to be caused by lone star ticks and chiggers.

So my daughter was diagnosed from a blood test with this allergy test last June 2019.

At first I was shocked but I wasn’t upset because I have faith that everything is going to work out. Yes I want to cry but I was at work so I sucked it up. I couldn’t cry at home because my husband was gone to an archery tournament and I was the only one caring for the kids. I didn’t want her to worry.

It is hard to have to tell your kid she can’t do something, especially when she loves something. When I sat her down she thought I was joking. She just turned 11 and she loves Spaghetti and meatballs, ribs and jerky. She can no longer eat “hairy meats” My daughter was upset but handled it well, and first thing that came to mind for her was no jerky. She handled it better than most adults would and she completely understood what was going on.

There is a chance this can be temporary as long as she doesn’t get bit again.

I have complete faith that God will heal her and this is only temporary. As a little background, she went to running camp and got ate up by chiggers and had a bad blood infection. She was sick for a couple weeks and every since then every so often she gets this rash that looks like a bruise. It was not very frequent so I never put it together that it would be an allergy. She also had stomachaches, headaches, and some minor rashes that looked like dry skin. It never was right after she ate, so when they said that I was shocked.

Now I am a firm believer that the people who are the least educated are the ones who worry the most. Man was I right on that! I started studying and asking and joined some groups to learn more.

But the problem is it is so new that there is not a lot of information. The CDC doesn’t even recognize it as a tick borne illness at this time.

There are some that have this that go into anaphylactic shock, which I am glad she has not. I still don’t believe it, I guess, but I think that just because she will be fine. There is not a cure, but we have a God I give all of our fears and our problems too. I know he is going to get us through.

Although I am still scared it’s not going to go away & she’s going to have a lot of changes. If it gets worse she’s going to have to carry an EpiPen. For only an 11 year old that is a lot but I know there are other kids out there dealing with so much worse. It’s just a rough road, but I know that our God is strong enough to take care of whatever we need. We will know more in a few weeks and I will update as needed but I’ve never thought it would be my child but I’m grateful and a little relieved that we are finally getting answers.

It is a start and I pray God will watch over us. No ma’am what we face there is always a silver lining. We just have to look a little harder at times.

Until more answers, we will pray, and enjoy life. We find a way to move on.